Monday, 7 December 2009

We did it our way…

Been a while since my last Blog, been trying to get our heads around where/how to start our home-ed, trying to get into a rhythm which took longer than I anticipated (maybe that was just my naivety), but in the end it just kinda feel into place by itself…

College began in September: I’ve had one daytime class to teach and one (out of possibly two) nightclasses to teach. Add to that one course (nightclass) I’ve had to do. Try to squeeze in some Design Work. Clinic on a Tuesday (trying to build up a Healing Practice) and most important of all, home-edding ’B’.

Now I feel we’re left ironing out the bumps!

I have to be honest, it didn’t all go smoothly in the very beginning. Gave her 6 weeks to get school and school-ways out of her head (and mine!). After half-term it was time to get cracking but to my horror I was faced with a very resistant daughter! I told her that if this was going to work then she needed to co-operate and work with me.

As a teacher I am aware of different learning styles and it seemed logical to work out ‘B’s style so I could deliver her education in the most effective way. We’ve taken a few weeks trying different methods and I think we finally cracked it at the weekend.

’B’ struggles to write anything down, her brain goes faster than her hands, she sees it in her head how she wants it to look and it never comes out that way. With ‘B’, it has to be right, there is no compromise, no inbetween, if it doesn’t come out like it looks in her head then she gets cross with herself and inevitably stomps off! Also the sound of a pencil/pen on the paper is akin to us hearing someone scrape chalk across a chalkboard, it’s a painful audio experience, remember ’B’s got incredibly sensitive hearing!

She can type really fast for a 10 year old so most of the time I get her to type out her work.

We’ve been studying blood this week and used one of her favourite resources, the whiteboard. I’ve found delivering her work in bitesize pieces works best for us, just dig out the hard facts, forget about ifs, ands and buts and enhancements. We created a kind of flowchart and it worked great. She retained the information and enjoyed the whole process!

So here’s where I nearly came unstuck, OK so how to save this flowchart so we can build up learning evidence for the Local Education Authority? Obviously too big to scan! Tried photographing it, couldn’t get it all in focus – it’s an A2 whiteboard! Tried to get her to try and write it in her book – not going to work either.

Was talking to my sis-in-law about how to proceed. She said what about sticky labels? Went home pondering on that one, mmm, had potential but needed more thought. Anyway I was wandering around Tesco on Sunday and there it was, right in front of me, Post-It Notes!!!!!!!

Arrived home with a very large supply of Post-It Notes. Simple, just recreate the flowchart using Post-It’s. She loved it, said it was fun and when could we do the next one? Sorted!!!!!

It’s so simple that it should have been the first thing I thought of. If she made a mess or a mistake it was easily remedied, new Post-It Note. If it didn’t all fit properly on the page when she finished, we simply repositioned it. Then all she had to do was put in the connecting lines. And it looked really neat too (she hates it if it doesn’t look neat).

We have our first meeting with the LEA on her birthday in a few days. I was dreading it, thinking they were going to crucify us because we hadn’t done enough work etc etc but now I feel we’re going to be OK. We now have a plan of action in place. So wish us luck, we’ll let you know how it goes!

Till next time
’B’s Mum

Wednesday, 28 October 2009

When is a chip not a chip?

You may be thinking, strange question?

In SID Land, it’s not so strange.

Eating is something that ‘B’ has been doing well with, since we told her she would be home-ed she has been able to try new foods, new textures, new colours etc. Great progress!

It’s easy to fall into a false sense of security with SID, you know, just as you think you’ve got on top of something, another ‘thing’ will take it’s place or an old one will spring back up into action, so don’t be fooled into thinking it’s fixed, it just might… there is a small chance you’ve cracked it… but it just might come back.

‘B’ likes to go for lunch on a Sunday at the local Supermarket cafe, a small miracle in itself but that’s another story. Apart from not coping when they insist in putting her chips in a bowl even though they should be used to her coming in by now, but last weekend they changed the shape of the chips. Now to a ‘normal’ child, a chip is a chip, right? Not to an SID child, like alot of children with any aspect of Autism (Spectrum or not) the spontaneous change of the appearance of an up until now accepted food is a big deal. They had gone from ‘normal’ chip shape to big flat ones, needless to say those chips didn’t make the journey to ‘B’s stomach!

This got me thinking, so I have compiled a useful (well I hope it may prove useful) list of things to consider when faced with trying to feed your non-eating/fussy-eater SID child.

1) Texture
Look at the food your child does eat, is there a common theme with texture? Take ‘B’ for example, she is Sensory Defensive, she doesn’t like anything in her mouth for more than a second, she needs foods that don’t require alot of chewing. Hence she eats lots of what I call slimy foods, foods that can be swallowed quickly. She can’t eat tuna or rice without being sick, think about it, they are dry, they don‘t slide down the throat!

2) Colour
After talking to other Mums with SID children, it appears alot of them like yellow foods. I haven’t a clue why. Maybe visually yellow is an inoffensive colour, it doesn’t hurt the eyes? I don’t know for sure, but ‘B’ was definitely a yellow foods girl! I’m happy to report that we now will also eat green foods.

3) Shape
As pointed out above, shape is important. Again, circles seems to be an acceptable shape. Think about this, circles have no edges, maybe edges cause problems in the chewing process? Others will only eat something if it is chopped into tiny pieces, this may be because they have an over-sensitive oral system that can’t handle tiny pieces, because again, they don’t require as much chewing.

4) Together Foods
I didn’t know what else to call this section LOL! For a long time ‘B’ would only eat her food if each component was on a different plate. It is a well known fact that Autistic children will freak out if their foods are touching.

5) Temperature
Again ‘B’ likes all of her food room temperature. Doesn’t matter what they are meant to be, hot or cold, she’ll only eat them when they are at room temperature. Again think about it, bland foods eaten at bland temperatures. Spicy food children may only eat hot foods and never touch cold foods. Ice cream children may only eat really cold foods. Get it?

6) Utensils
Does your child try to eat everything with a spoon? Even things that don’t require one? There is a reason for this, if they do, it’s all about making sure the food goes ‘down the hatch’ without touching the sides! I don’t worry what ‘B’ uses to eat with, as long as it’s not dangerous obviously, it may look strange to me but if she’s comfortable with it, so am I. Look at the plates you use, are they plain, do they have a picture, which one does your child use the most? Shapes and colours of cups are just as important, as are drinking straws. Just be observant and find your child’s pattern.

7) Where to eat

There is alot of pressure on people to make sure everyone eats at the same table for meals. There are so many reasons why this is hard for an SID child.
a) Contamination
Someone else breathing over their foods equates to contamination.
b) Concentration
‘B’ eats more and best when she is in front of the TV. The TV provides a distraction for her so she is not solely concentrating on her food. Without this distraction eating becomes a huge ordeal for her.
c) Eating Habits
Other people’s eating habits, particularly other small children who don’t necessarily have great table skills. Things like eating with mouths open, getting food all over themselves, people talking whilst eating – these are all things that can cause an SID child great stress.

I’ve obviously only really given examples of our own experiences. I can’t stress enough that the key to getting on top of SID, I think, is really get to know your child (inside and out)! Forget about what is expected from society, what the parenting books say you should be doing, what others expect of you. Your ‘normal’ is just a different type of normal to others.

I’m of the opinion that we shouldn’t be trying to get them to fit into our world, we should be looking at how to fit into theirs. Put yourself in their shoes, do you really think they do this on purpose? You know, in your heart, they don’t!

It takes time and patience, but believe me, you will find a pattern. This pattern is as unique as every child that has SID, no two are going to be the same.

Till next time
‘B’s Mum

Thursday, 8 October 2009

Seasons come, seasons go…

and in SID land we meet the incoming seasons with some trepidation!


Changing seasons have a funny effect on our little SID folk, particularly summer to autumn and winter to spring. It’s not just the change in temperature, we also have the clocks to contend with.

So what happens? Bear in mind that SID kids’ brains are out of sync, their brains don’t always interpret the messages the way they should.

Example: In winter you’ll probably see ‘B’ insisting on wearing flip-flops, shorts, short sleeves and insisting that it’s too hot for a coat. If you feel her hands, she’s actually warm and toasty! In the spring she’ll put on her winter coat, button it up to the top, get out her boots and gloves and insist she’s freezing cold.

OK, so it does conjure up an amusing picture but it’s really not that funny. Their internal thermostats are running amok, their external bodies can sense a change in temperature and humidity but the brain is insisting the opposite.

Clock changes in our house take about a month to adjust to, her body clock refuses to get into sync (and why should it, they are after all known as the out of sync children LOL), so we have ‘B’ not only dressing inappropriately, but wanting to do so at the time her internal clock tells her to.

This year is different for us in that ‘B’ is now home-schooled. This at least means that when her body refuses to wake up she can at least let it sleep. In theory this should help as she will be able to follow her own rhythm instead of the clocks! That’s the theory anyway, we’ll let you know what happens in reality.

Till next time
‘B’s Mum

Friday, 18 September 2009

This could be the straw that broke the camel’s back

Forgive me for digressing from the usual theme of my posts but I have to get something off my chest.

Last night I think I may have wasted 3 hours of my life… and unfortunately I’m probably going to waste another 3 hours every week for the next 11 weeks!

How? I have been teaching at the local college for the last 4 or 5 years (can’t remember exactly). I got involved in teaching as a way of passing on the knowledge I’ve gained in 21 odd years in graphic design. Our ‘hopelessly out of touch’ Government decided that all non-qualified teachers have to do a PTLLS* course by 2010 or give up teaching.

This course is supposed to prepare us to teach!!!!! From what I saw last night I’m not sure I want to teach anymore. No wonder our kids are leaving places that are meant to prepare them for a career with no idea of what they’re doing…

I don’t want to be turned into an academic. I don’t want to waste precious hours of my life filling out paperwork in triplicate. I just want to share my knowledge to help prepare people to work in the graphic design industry. I don’t want to think until my head feels like it’s going to burst.

At the moment I’m not sure I’m going to see this course through. I’m not a quitter, I love learning, my head is full of ‘stuff’ that I’ve accumulated over the years but this just seems so far removed from what I do and how I do it. I’m not perfect and I’m not the best teacher in the world but I get the result I set out to achieve.

OK so rants over, I’ll get back to some real work.
Till next time
’B’s Mum

*PTLLS – Preparation to Teach in the Life Long Sector

Wednesday, 9 September 2009

Rome wasn’t built in a day

OK, so although school started this week, we haven’t started home-ed yet…

‘B’ needs time… time to adjust. Remember we’ve only just decided to home-ed. I think the reality of it kicked in (for both us) on Tuesday. We were getting ready to drop ‘B’s dad off to do a Mind Body Spirit Fayre, we were loading up the car and I think it was then that ‘B’ noticed everyone going to school (and it hit home). Me, I had to shake the feeling that she wasn’t ‘skiving’, I know it sounds silly, but I did have to remind myself that I don’t have to run around in the shadows, I can stand tall and proud and say ‘we home-ed’ if anyone challenges us.

It was then that I realised how much conditioning has been going on, for all of us. We need time to get our heads out of the traditional educational pattern and get ourselves into our pattern, and that our pattern is going to be ‘B’-shaped! What does ’B’-shape look like? Mmm, kinda random and certainly unusual!!!!

At the end of last week I was convinced I needed to be more organised and get some sort of semblance of order if this was going to work. Today I’m thinking, why on earth did I think that? We don’t have to follow any timetable or curriculum, we can literally just go with the flow…

We’ve already experienced a certain amount of liberation from our previous constraints, in the form of ‘B’s newly opened willingness to try new things and her new found ability to be able to get into the car and actually go somewhere without having a panic attack or not being able to get out of the bathroom until she’d been to the toilet 20 times (and then if she lost count we would have to start again or in most cases just give up and stay home). We went to Southwold’s Maize Maze and had a wonderful time, it’s been sooo long since we’ve been able to go anywhere further than 20 minutes away, in fact, that outing has turned into one of our first home-ed projects, she took loads of photos and asked loads of questions… this is a way she enjoys learning…

’B’ was also a stickler for routine, as with most children with any type of Autistic tendencies. Again this hit me out of the blue, a new word for us… spontaneity. Yes, we have achieved this a few times already. I think I’m beginning to see the full impact of the stress she’s been under, I knew she struggled with school, but I’m seeing a whole new ‘B’ emerging already, things can only get better right? I’d rather have a happy laid-back ’B’ than the little girl that was around this time last year!

As my title says, Rome wasn’t built in a day… we just need a little time.

I’ve a feeling we’re going to be OK.

Till next time
‘B’s Mum

Monday, 17 August 2009

Taking the plunge

It’s been a hard few weeks. We’ve talked and talked and talked about it. We’ve asked family and friends about it. In some ways it’s been both the hardest and the easiest decision we’ve ever had to make…

What am I talking about? Home Ed.

‘B’ has struggled with school ever since she started going. Without going into any of the finer details, we came to the conclusion that no matter how many meetings we have with the school, no matter how many times I try to explain it (and believe me I’ve lost count of the number of times I have tried to explain it), we just aren’t making any progress at all.

I don’t think ‘B’ can take another winter like the last 3, I don’t think I can either. What everyone seems to forget is that I’m the one who has to pick up all the pieces when it all goes wrong…

It didn’t help that we both had different thoughts on the subject. Ultimately we both want to do what’s best for our daughter. It’s a huge responsibility and it wasn’t a decision that we made lightly.

We’ve started looking into Home Ed a long long time ago, I guess I always had a sneaky feeling this was the road we were going to take at some point. So now we have, what does it feel like? In a word, liberating.

We have tried to fit our square peg into a round hole for so long, now it’s time to make a new hole, one that’s ‘B’ shaped. On those days when she can’t bear to wear any clothes we’ll be doing lessons in her PJ’s!

‘B’ is excited, I’m excited, Dad is wary! He learnt along time ago to trust my instincts, he knows we‘re going to be OK.

We’ll keep the Blog updated with how things progress. I’m now off to write an Educational Philosophy Statement for the LEA, I wonder what I’ll put in it?

Til next time
’B’s Mum

Monday, 6 July 2009

Please Don’t Apologise

The few times I find myself mentioning that my daughter has SID to new people, I have found the first thing they say is: ‘I’m so sorry’. Why are they sorry? I’m not…

Maybe I’d better explain a little more…

It’s obvious from that response that people think there’s something wrong with my child. Actually I like to look at it another way.

My child is unique, sure she has problems but hey don’t we all? I have a relationship with my daughter that is so strong, we know each other so well that we don’t even have to speak to know what the other is thinking. I treat her as a little person, not a kid, a person. I ask her opinion, I respect her thoughts. (Now just because she gets a say in everything doesn’t mean she rules the roost, what it does mean is that we respect her opinions and take that into consideration, after all she is part of our family). She has a totally different perspective on things, she takes notice of things others take for granted, she opens my eyes up to all possibilities, she has a beautiful heart, she truly cares for people. We don’t ignore her. In truth, we probably learn more from her than she does from us.

This has caused some of her friends to envy our relationship because they wish their parents took notice of them in the same way. We are not perfect, we are not always right, but we do work together as a family.

Why on earth would I want to change her? I love her just the way she is, as time goes by she is learning how to adapt to her needs and is doing a great job so far.

So next time you come across someone who has a child with any type of disability, and you feel those words forming on your lips, maybe rethink it: have empathy yes, but please don’t feel sorry for us. We are truly blessed with these children.

Till next time
‘B’s Mum

Monday, 29 June 2009

Sick of the sound of my own voice

I really don’t know why I bother sometimes. I’m sooo fed up with having to explain SID over and over and over and over… for those of you in the same boat you’ll know exactly what I mean.

Why won’t somebody just realise that living with SID and having SID basically in a nutshell means life is hard work, every day is hard work. Having SID is not a game, it’s not about getting your own way, it’s not about being picky…

For anyone about to slide down this slippery slope we call SID World, here are some things you’d better get used to:
1) Explaining SID and it’s impact on your child’s life sooo many times you begin to question your own sanity.
2) Expect no help ’cos that’s basically what you’ll get! Certainly not in the UK anyway.
3) Get used to the idea that no-one really even understands what you are talking about.
4) Prepare yourself for spending alot of your precious time running round and round in circles.
5) Stand your ground, if you’re convinced it’s not Aspergers don’t accept any other diagnosis.
6) Be prepared to defend yourself as to why it’s not Aspergers, oh yes, this will happen.

Till next time
‘B’s Mum

Wednesday, 17 June 2009

And the floodgates did open…

Monday morning… I’m getting ready downstairs, hear ‘B’s alarm clock going off, hear it turned off really quickly, hear footsteps to the bathroom, hear footsteps back from bathroom, hear footsteps on the stairs… mmmm, something not quite right. Usually takes at least half an hour to achieve all that. Door swings open and there we have a rather bedraggled ‘B’, looking something like Alice in Wonderland when she starts crying and flooding the place because she couldn’t stop, bless her.

She cried and cried and cried, I was soaked, had to change tops! Grabbed some Emergency Essence Flower Remedy which was gratefully received – not the usual resistance – and we waited for the storm to calm.

So what brought this on? In one word: ANXIETY. ‘B’ is what they call Sensory Defensive. Her nervous system is basically in a state more commonly known as the Fright or Flight State ALL the time. Can you even imagine what that must feel like?

Since the clocks changed ‘B’ had sprung back into action, happens every year, this last Winter for some reason being especially bad. She’s been doing so well though, a bit too well. Since April she had decided to stay for packed lunch, normally she comes home every day (except swimming day ’cos otherwise we’d be coming back before we’d got home!).

We found coming home for lunch gave her some time to regroup before the afternoon, this has worked really well for her so far. Downside is me having to traipse backwards and forwards to school all day (good job I’m self-employed huh?) but that’s a sacrifice I’m willing to make. It makes sense, a happy ‘B’ equates to a happy Mum!

Back to the story: something had to give. The last few days she hadn’t been quite so ‘bounce out of bed’ more like ‘roll out of bed once I’ve been given a little push’ type of thing. I think the extra stress of being at school all day every day finally took it’s toll on her. Whether she wanted to or not, her body needed to let it all out.

And let it all out she most certainly did. Afterwards she commented that she didn’t understand why she had been crying but that she felt alot better. A day off school was all that was needed to put her back on course. Why a day off? If you had seen her, you wouldn’t be asking this question. She was exhausted, remember it wasn’t just tears that she shed, it was all the anxiety too.

OK, so it’s now Friday and we’ve found the culprit. This is quite usual for us but I think it’s important to find the cause of the anxiety, you can avoid a repeat scenario if you know what sets her off, you know? 2 things: Sports Day, in ‘B’s world, this is on a par with school plays, it’s a performance in front of spectators and that freaks her out! She’s not able to participate and just enjoy the experience, whether a successful outcome or not she should still enjoy it. It’s the combination of the competitiveness, the pressure of coping with people watching, too many people in one place, schoolmates telling her she’s going to make them lose ’cos she’s not a natural-born athlete, that kind of thing.

The 2nd: anxiety about whose class she’s going to be in next school year. They usually leave it until a day or 2 before the end of year, not enough time in SID World to prepare and assimilate. We do plenty of work during the holiday to get her used to the idea but I’m not sure the school truly understands what living with SID is like. Because she appears so ‘normal’ (I hate that word) I think they forget, or maybe don’t even fully accept, that preparation is key to EVERYTHING we do.

Solution: I don’t put my daughter through any more stress than is ABSOLUTELY necessary. I’m the one that has to cope, B’s the one that pays the price. Is it really worth letting her get sooo stressed? You may not agree with me, but I don’t think it is. So, morning off school and a letter explaining the whole situation to her teacher.

Communication is so important, if I am to help the school understand I need to be open and honest with them… Communication with your child is equally important, if they can understand how their body works and why it happened, they can learn to help themselves. In turn it helps them feel that they have some control over the SID, not the other way around, and empowerment is a wonderful tool.

Till next time
‘B’s Mum

Thursday, 4 June 2009

For once it didn’t go pear-shaped

School holidays – usually not something either ‘B’ or I look forward to. Not because we dread spending time together, quite the opposite actually, she’s in her element when it’s just me and her – it’s the break in routine that does it.

Like alot of children with Autistic Spectrum Disorders (ASD’s), SID kids need their routine, some of them to the point where everything is timed down to the exact minute. Luckily for us ‘B’ isn’t THAT particular but changes in her routine usually flip her out. So, we try to get up the same time, start doing stuff when she would begin her school day, finish when the school day would finish – you get the picture?

Woe betide you if you slip in some spontaneity. SID and spontaneity don’t co-exist nicely, in fact they don’t co-exist AT ALL. EVERYTHING has to be set out the night before, no deviations from the plan. Oh, and just a tip, don’t promise anything either.

Promises are like routine and you will usually end up breaking that promise. You know the kind of thing, ‘I promise we’ll go to the park tomorrow’ and then a freak rainstorm hits, everywhere is cold, wet and waterlogged. SID kids take promises literally. They don’t see the unforeseen events as a reason to break a promise. Even though logically their brain understands you can’t play when the park is flooded, you promised they could go. I think, that’s kinda where the Meltdown may come from, I don’t know, it’s almost like that unforeseen event causes confusion instead of logic, the confusion then leads to frustration and the frustration inevitably leads to Meltdown.

It’s better to word it differently, something along the lines of ‘If we can, maybe we’ll go the Park tomorrow’, even when she says ‘Promise?’ I reinforce it with ‘We’ll try our best OK?’. I’m not promising… so in her mind, logically it will make sense if something crops up and we can’t go. Does that make sense?

Anyway back to the story… First day back at school is usually a practice-run for us. We go through the motions and indeed the intention of getting to school, but realistically we usually end up at Meltdown point and ‘OK let’s try again tomorrow, we’ve had a practice so you know what you’re doing now don’t you?’ kind of thing.

I’ve learnt not to push, I recognise the signs by the body language and the expression on her face. There is absolutely NO POINT in pushing it to a Meltdown, it doesn’t do you any good and it most certainly doesn’t do them any good. You get so you can head a Meltdown off before it gets to boiling point, you just have to learn the art of knowing your child inside out. You know how it will turn out so why push it?

So there we were Monday morning, hoping for a successful departure, not EXPECTING a disaster (that’s negative thinking and they pick up on that, trust me!), more of being prepared for a disaster and… it didn’t happen! ‘B’ actually got to school in one piece and on time and a smile on her face!

This is something we have struggled with EVERY holiday so this was a major step forward. She was really pleased with herself, as was I.

Here’s the irony, that doesn’t mean it’s fixed now, next holiday we could go backwards, with SID you never know what’s coming next. We just try not to think about it, deal with each day as it comes, don’t make any long-term plans and basically go with the flow. If you stress about it you WILL become a mess, better to accept it for what it is and adapt, you’ll get through it much better if you do.

Till next time
‘B’s Mum

Thursday, 28 May 2009

A different type of normal

Where to start…

OK, I was inspired to start my own Blog after coming to the conclusion that 'If Mohammed won't come to the mountain, the mountain must come to Mohammed’, in this case I’m the mountain and Mohammed is every ‘official’ I seem to have come up against, trying to get them to see that SID is real and if no-one will acknowledge it, how on earth will we ever make it a condition that everyone is familiar with?

In the UK it’s unheard of, to the point where the local Mental Health Trust can’t make a diagnosis (even though they concur with you that’s it’s most likely is SID, after they’ve looked at your research, your reasons for thinking it’s SID, googled official websites to find out more, listened to your arguments why it’s not Aspergers) because it doesn’t even appear on some International List of Disorders that they have to adhere to… I refused to accept what they said was the ‘nearest alternative’ diagnosis: Aspergers, it’s not Aspergers! I was even told to tell her school etc. that it was Aspergers, purely because people now know what it is and have a basic understanding of the condition. So for crying out loud… how is SID going to become better known if we just tell people it’s something else?

So what is SID? It’s not Aspergers, it’s not ADHD and it most certainly is not attention-seeking spoilt brats manipulating poorly-skilled parents. SID is a very complicated condition, I think it’s safe to say that no 2 children who have it are ever going to be alike, it’s heart-breaking from a parent’s point of view and extremely frustrating from the child’s point of view. SID is on the Autistic Spectrum and can co-exist with other conditions like ADHD, Aspergers, OCD, AD, PPD-NOS, SAD, Bi-Polar etc. It takes alot of work, from all sides, not just the sufferer, and just as you think you have finally got something under control, something else pops up and bites you in the butt and creates a whole new set of problems. Even strategies that used to work may one day no longer be a viable option.

When my daughter ‘B’ was first diagnosed,
I tried to find a way that a 7 year old could understand it. I used a pasta as an example: when the brain sends a signal to the body, it’s like a message travelling down a long piece of straight spaghetti, it gets to it’s destination with no interruptions or confusion. When the brain sends a signal in someone with SID, it’s like a whole plate of spaghetti, all mixed up, the signal can‘t find it’s way through the tangle of pasta and ends up either in the wrong place or gets lost in the mess. Does that make sense to you?

It’s so easy to feel overwhelmed and defeated with SID, but we’ve always tried to view it as an ‘inconvenience’, if you like, not an all-consuming nightmare. If you try to look at SID as the annoying little side-kick instead of the super-villain, you will come to realise that you’re no different to any other family, it’s just your ‘normal’ is a different ‘type’ of normal…

There’s a wonderful Blog on My Blog List, that I think sums it up better than I could ever do (Pancakes Goes Awry – Friday, October 10, 2008). Please take time to read it, it’s an education.

Blessings till next time
B’s Mum