Showing posts with label ASD. Show all posts
Showing posts with label ASD. Show all posts

Tuesday, 24 November 2015

Emotional Roller Coaster

So, B has been at College for a little while now and it's been one heck of a roller coaster ride for her, and me!

I am so proud of her for sticking with it. I know there have been many times when she has wanted to just pack it all in, days that have been so damn hard for her to face, days when I have wanted to cry for her but having said that, there have also been some awesome days!

Sensory-wise she has coped pretty well, over the years she has developed her own set of coping skills. Anxiety-wise and OCD-wise things have been tough.

We didn't know what challenges, if any, we were going to be faced with. Note I said, WE not SHE, we're in this thing together, it's a team effort and always will be!

Unfortunately her Anxiety reached peak levels, and Anxiety's best friend, OCD, likes to come and play too on days like this. The Anxiety/OCD combo is so bad that she can't handle me going home whilst she's at College, the stress of worrying about me driving home is too much for her to cope with. So what do I do? I sit in the car and wait, that's what I do! My priority right now is to help her settle into College and if this is the only way we can do it, then that's how it is.

Her stress over my welfare comes from several things. Firstly, my health. Over the last few years I have spontaneously found myself rushed to hospital and during my stays have invariably ended up much worse, due to my intolerance of medications, what is supposed to make you feel better tends to work the opposite way with me. Plus we have had quite a few near misses in the car, where it seems I am invisible or something, so many cars just pulling out in front of us! Add into that, an incident, when I was taking her dad to an appointment and she didn't hear me say I was staying, instead of coming home and picking him up later, plus my forgetting to turn my phone on... when we returned she was in a terrible state, her brain had gone over so many scenarios, all of them bad, that since then she hasn't let me out of her sight. I guess you could say, I am her obsession right now.

She is having counselling at College, a step forwards as up until now, B wouldn't entertain the idea, but she has realised that this current situation is not healthy for either of us. It seems she has gone through what is equivalent to a terror event/PTSD. I know it sounds crazy, but when you remember that she is primarily Sensory Defensive, (her nervous system is on high alert most of the time) and the OCD behaviour, it makes sense. To your average person this would have simply been a stressful one-off, for her, it's HUGE.

I've always referred to the obsessive stuff as obsessive compulsive BEHAVIOUR as we've always believed it was just that, behaviour, as opposed to Disorder but it looks likely that somewhere along the way, she has indeed fallen into full blown OCD. We are now waiting on a formal Assessment and will see where that leads us...

But back to College... she has shown such an incredible inner strength to keep going. Her course is challenging, well for anyone with a Spectrum it would be, it's a Carousel course, so they keep swapping to something else every 6 weeks or so and the timetable is never the same two weeks running, sometimes she can be done for the day by lunchtime! But she has managed it!

The College staff have been excellent, very supportive and in fact some of her tutors have children themselves who suffer from OCD, Anxiety and/or being on the Spectrum, so they know only too well how difficult life can be from first-hand experience. This is actually a good thing, as B feels they 'get it'.

And to put the icing on the cake, she's getting Merits in most of her Tasks... I mean, look at this wall she built last week...



Till next time
B's Mum

Tuesday, 23 June 2015

End of an Era

Well, tomorrow my baby girl goes off to College for her Taster Day, preparation for when she starts her Painting & Decorating Course in September.

This is a huge step for B. She has been out of mainstream education for 6 years now so there are lots of challenges ahead for her.

For the most part, she has so far handled it all pretty well. We've had the drama of not being able to find workwear small enough for her size 6 frame but we did eventually find a boilersuit that fits her about 95%! As anyone reading this, whose child suffers with the dreaded oversensitivity to clothing, knows only too well, not only did we have to find something that fit but something that wouldn't send her into Sensory Overload. For the last 6 years we haven't had much issue with clothing, mostly because on those days when it was an issue, she simply stayed home in her pj's!

She has to be there for 9am sharp tomorrow morning and this is another huge challenge! I know some of you will be smiling here too, knowing how Time and SPD are not the best of friends!

College is a big deal for most of our teenagers. A new environment where they are encouraged to make their own decisions instead of being told what to do and when to do it, can be a daunting prospect. Add SPD into the mix and it can be an incredibly stressful prospect.

She even said to me the other day, that she wondered what she was thinking, could she really pull this off, could she actually do the Course? My reply? You don't know until you try and if you don't try, you'll only regret it later. Just think, if you can pull it off... the world is your oyster! And if you can't... well at least you gave it a damn good try and we'll just sit down and have a rethink, it's not the end of the world.

Wish us luck
Till next time
B's Mum

Tuesday, 15 November 2011

Don’t you know it’s important to have an education?

Don’t you know it’s important to have an education?
You are ruining your chances of getting a job.
Why don’t you have lessons?
It’s important to go to school.
You are ruining your life…

I swear if I hear these phrases one more time I will scream!

‘B’ belongs to several websites, some of which she plays on, others she chats on, like most kids her age. She has made friends with a few people but she has become very hesistant to mention that she is home-educated when they ask what she did at school, why she is up so late on a school night etc. etc. Why? Because as soon as she mentions it, she is bombarded with these types of questions or negative comments.

They simply won’t respect that everyone has a choice and this is our choice (note I said OUR choice). She has to justify why and how and what she is doing. Most seem to think she is ruining her life. They simply don’t get it…

Initially I pulled ‘B’ out of school because they clearly had no idea how to help children on the spectrum survive the school system, their so-called experts not having a clue about the intracacies of our children’s lives, trying with all their might to tick those precious boxes they love so much. But to be honest, the deeper I dug the more disillusioned I became with the whole education system, most of it based on targets and budgets. I wanted my child to be able to have her own opinion, I wanted her to feel she has some value to add to society instead of constantly being compared to her peers in terms of what they deemed as successful. I wanted her to be able to solve problems, to think outside the box, to learn through investigation and experience, to be able to understand the true function or importance of something in relation to the real world. I wanted her to be… well quite simply… herself!

These people get very angry with her because she doesn’t have traditional lessons. Her learning is embedded into activities, we have no need for lessons. They condemn her because she isn’t taking exams. She finds it all overwhelming… we never ask them to justify why they feel the need to go to school, doubtless if we did ask them, the reply would be something along the lines of ‘Because that’s what I’m told to do, that’s what we are meant to do.’ Some of them have turned quite nasty and been very unkind to her… she is neither stupid or idle!

As the saying goes, there’s more than one way to skin a cat and that’s the premise we are working on… we didn’t go into this blindly, we know what we are doing. For example, she is only 12 but we have already put the wheels in motion for long-term work experience once she is 14 (health and safety rules). She has many ideas of her own how to secure self-employment, even at this age. I have faith in her, she isn’t going to rot on the heap, she knows it takes hard work and she’s willing to do it too. She also knows that to be successful isn’t dependent on how much you earn or what kind of house you live in or car you drive, it’s much more than that.

And to be honest, if you ask around, alot of home-educators, like myself, are teachers anyway. What does that say about the education system?

HOME-EDUCATING AND PROUD TO BE DOING SO!

Till next time
‘B’s Mum

Saturday, 5 November 2011

Fireworks

Sorry, this blog post is going to take the form of a good old fashioned moan… I HATE this time of year and it’s because of one thing… FIREWORKS!

Why, oh why, do they have to be so loud?

We live literally a 3 minute walk from the beach and every year we have to endure various fireworks displays, one that takes place during the summer at the end of the annual Clifftop Gala. 2 years ago I found myself actually filing a complaint… the fireworks were sooo loud, everything shook – the dog, my daughter, the floors, the whole house! I’m not one to complain, not usually, but this was too much. The bangs were more like you imagine full-on explosions in a war zone would be like. ‘B’ was terrified and that was what prompted the complaint, I had never seen her so scared, she couldn’t stop shaking for hours, she was hysterical with fear.

Then you have Hallowe’en and Bonfire Night. Last night there were bangers and then ‘screamers’, lots and lots of them (supposedly the grand finale ’cos after that ‘burst’ it all stopped). The whole thing went on for the best part of an hour and a half of constant fireworks. You could smell the smoke from them in the garden, they were that close! Heaven only knows where they were being set off but they were way too close for comfort. Again I had ‘B’ in a right old state, shaking and in floods of tears.

I don’t have a problem with people enjoying themselves but it’s about time they were banned in built-up areas. My daughter can’t be the only one that gets distressed.

Fingers crossed it is raining cats and dogs tonight!

Til’ next time
‘B’s Mum